{"id":9727,"date":"2023-10-02T13:17:20","date_gmt":"2023-10-02T13:17:20","guid":{"rendered":"https:\/\/habilitas.ca\/rafael\/"},"modified":"2024-03-31T15:38:03","modified_gmt":"2024-03-31T15:38:03","slug":"rafael","status":"publish","type":"post","link":"https:\/\/habilitas.ca\/fr\/rafael\/","title":{"rendered":"Rafael"},"content":{"rendered":"

[et_pb_section fb_built=\u00a0\u00bb1″ _builder_version=\u00a0\u00bb4.16″ global_colors_info=\u00a0\u00bb{}\u00a0\u00bb da_is_popup=\u00a0\u00bboff\u00a0\u00bb da_exit_intent=\u00a0\u00bboff\u00a0\u00bb da_has_close=\u00a0\u00bbon\u00a0\u00bb da_alt_close=\u00a0\u00bboff\u00a0\u00bb da_dark_close=\u00a0\u00bboff\u00a0\u00bb da_not_modal=\u00a0\u00bbon\u00a0\u00bb da_is_singular=\u00a0\u00bboff\u00a0\u00bb da_with_loader=\u00a0\u00bboff\u00a0\u00bb da_has_shadow=\u00a0\u00bbon\u00a0\u00bb da_disable_devices=\u00a0\u00bboff|off|off\u00a0\u00bb][et_pb_row _builder_version=\u00a0\u00bb4.16″ background_size=\u00a0\u00bbinitial\u00a0\u00bb background_position=\u00a0\u00bbtop_left\u00a0\u00bb background_repeat=\u00a0\u00bbrepeat\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb4_4″ _builder_version=\u00a0\u00bb4.16″ custom_padding=\u00a0\u00bb|||\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb custom_padding__hover=\u00a0\u00bb|||\u00a0\u00bb][et_pb_text _builder_version=\u00a0\u00bb4.22.1″ global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n

Voici l\u2019histoire de ma vie avec mon mari Alex et notre merveilleux fils Rafael. Raf, comme nous l\u2019appelons affectueusement, est un petit gar\u00e7on espi\u00e8gle et plein d\u2019\u00e9nergie. Son rire contagieux ensoleille chacune de nos journ\u00e9es. Raf a maintenant deux ans, et il adore glisser et courir apr\u00e8s sa grande s\u0153ur. Avec sa gentillesse sans borne, il a vraiment le don de nous faire sourire!<\/p>\n

Comme vous le verrez en lisant son histoire, Raf conna\u00eet son lot de d\u00e9fis depuis sa naissance.<\/p>\n

Quand il est n\u00e9, il ne pesait que quatre livres et avait du mal \u00e0 respirer. On l\u2019a donc transport\u00e9 sans attendre aux soins intensifs n\u00e9onatals. Cinq semaines plus tard, notre b\u00e9b\u00e9 ador\u00e9 avait \u00e0 peine gagn\u00e9 quelques onces… Il avait du mal \u00e0 s\u2019alimenter et \u00e9tait tr\u00e8s mou quand nous le tenions dans nos bras. On lui a donc fait passer des tests g\u00e9n\u00e9tiques, qui ont r\u00e9v\u00e9l\u00e9 qu\u2019il \u00e9tait atteint du syndrome de Prader-Willi. C\u2019est une affection rare du m\u00e9tabolisme et du tonus musculaire qui se manifeste chez les b\u00e9b\u00e9s par des pleurs faibles et un mauvais r\u00e9flexe de succion, en plus de nuire au d\u00e9veloppement g\u00e9n\u00e9ral.<\/p>\n

\"\"Ce diagnostic nous a remplis de peur et d\u2019inqui\u00e9tude. C\u2019est comme si nous basculions dans un monde inconnu et \u00e9trange… Nous nous sentions perdus et seuls, la t\u00eate remplie de questions quant \u00e0 l\u2019avenir de notre gar\u00e7on ch\u00e9ri.<\/p>\n

Les mois qui ont suivi ont \u00e9t\u00e9 une p\u00e9riode tr\u00e8s sombre. Raf devait \u00eatre nourri \u00e0 l\u2019aide d\u2019une sonde qui, entrant par son nez, d\u00e9posait un m\u00e9lange de lait maternel et de lait maternis\u00e9 dans son estomac. \u00c0 cause de son retard de d\u00e9veloppement et de son faible tonus musculaire, il tardait en moyenne de six \u00e0 huit mois pour atteindre les \u00e9tapes habituelles de la petite enfance.<\/p>\n

Heureusement, la lumi\u00e8re est apparue au bout du tunnel : nous avons re\u00e7u un appel nous annon\u00e7ant qu\u2019il y avait une place pour Raf au Centre de r\u00e9adaptation MAB-Mackay, un \u00e9tablissement reconnu pour son expertise, son accueil chaleureux, la qualit\u00e9 de ses soins et l\u2019espoir qu\u2019il offre aux enfants et aux familles!<\/p>\n

Raf avait 14 mois lorsque nous avons eu notre premier rendez-vous. D\u00e8s le premier contact, l\u2019\u00e9quipe du Centre s\u2019est d\u00e9vou\u00e9e corps et \u00e2me pour aider Raf, lui offrant des th\u00e9rapies qui ont nourri son rire et sa joie. Ces th\u00e9rapeutes investis sont rapidement devenus nos guides, nos lumi\u00e8res.<\/p>\n

[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row make_equal=\u00a0\u00bbon\u00a0\u00bb admin_label=\u00a0\u00bbTestimonial\u00a0\u00bb _builder_version=\u00a0\u00bb4.17.1″ global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb4_4″ module_class=\u00a0\u00bbds-vertical-align\u00a0\u00bb _builder_version=\u00a0\u00bb4.16″ custom_padding=\u00a0\u00bb|||\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb custom_padding__hover=\u00a0\u00bb|||\u00a0\u00bb][et_pb_text _builder_version=\u00a0\u00bb4.22.1″ quote_font=\u00a0\u00bb||on||||||\u00a0\u00bb quote_text_align=\u00a0\u00bbcenter\u00a0\u00bb quote_font_size=\u00a0\u00bb22px\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n

\n

\u00ab\u00a0Nous ne savions pas que le Centre de r\u00e9adaptation MAB-Mackay deviendrait notre bou\u00e9e de sauvetage, un endroit o\u00f9 des th\u00e9rapeutes d\u00e9vou\u00e9s transformeraient nos inqui\u00e9tudes en jalons.\u00a0\u00bb<\/strong><\/p>\n

\u2013 Yael, maman de Rafael<\/p>\n<\/blockquote>\n

[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=\u00a0\u00bb4.16″ background_size=\u00a0\u00bbinitial\u00a0\u00bb background_position=\u00a0\u00bbtop_left\u00a0\u00bb background_repeat=\u00a0\u00bbrepeat\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb4_4″ _builder_version=\u00a0\u00bb4.16″ custom_padding=\u00a0\u00bb|||\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb custom_padding__hover=\u00a0\u00bb|||\u00a0\u00bb][et_pb_text _builder_version=\u00a0\u00bb4.22.1″ global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n

Gr\u00e2ce \u00e0 leur soutien bienveillant, Raf a pu surmonter une foule d\u2019obstacles, un jour \u00e0 la fois. Son premier objectif a \u00e9t\u00e9 de s\u2019asseoir sans aide. \u00c7a lui a demand\u00e9 de travailler tr\u00e8s fort pour d\u00e9velopper la force de son tronc. Une fois cet objectif r\u00e9ussi, les th\u00e9rapeutes ont travaill\u00e9 son \u00e9quilibre et son tonus musculaire pour qu\u2019il puisse ramper, atteindre des objets et, finalement, marcher. Et gr\u00e2ce \u00e0 ces th\u00e9rapies, Raf a pu d\u00e9couvrir son activit\u00e9 favorite\u00a0: glisser!<\/p>\n

L\u2019\u00e9quipe du MAB-Mackay est notre bou\u00e9e de sauvetage. Vraiment. Ils comprennent nos inqui\u00e9tudes quant \u00e0 l\u2019avenir de Raf et sont l\u00e0 pour nous lorsque nous avons besoin d\u2019un peu plus de soutien. Pour nous, c\u2019est comme une famille \u00e9largie. Chaque fois que nous entrons au MAB-Mackay, je vois \u00e0 quel point Raf s\u2019y sent heureux, \u00e0 l\u2019aise et en s\u00e9curit\u00e9.<\/p>\n

Notre histoire ne s\u2019arr\u00eate pas l\u00e0.<\/em><\/p>\n

Malgr\u00e9 les progr\u00e8s de Raf et nos nombreux \u00e9pisodes de joie, nous continuons de nous inqui\u00e9ter pour l\u2019avenir de notre fils. Jusqu\u2019ici, nous nous sommes surtout concentr\u00e9s sur son d\u00e9veloppement moteur, mais il faudra maintenant travailler ses aptitudes langagi\u00e8res.<\/p>\n

Imaginez le d\u00e9sarroi que nous ressentons lorsque nous voyons les camarades de Raf se parler <\/strong>entre eux \u00e0 la garderie.<\/strong> Pour sa part, Raf babille beaucoup et peut \u00e9mettre des syllabes, mais il n\u2019arrive \u00e0 prononcer que quelques mots, comme \u00ab maman \u00bb, \u00ab papa \u00bb et \u00ab non \u00bb. Je me sens mal pour lui, car c\u2019est un gar\u00e7on fut\u00e9, et je sais qu\u2019au fond, il a vraiment envie de nous parler et de s\u2019exprimer.<\/p>\n

Nous travaillons actuellement avec notre orthophoniste du Centre MAB-Mackay pour aider Raf \u00e0 coordonner les mouvements de sa langue et de ses l\u00e8vres afin de prononcer des mots. L\u2019\u00e9quipe nous a aussi enseign\u00e9 des notions de langue des signes am\u00e9ricaine (ASL), ce qui aide Raf \u00e0 communiquer. Nous \u00e9tudions \u00e9galement la possibilit\u00e9 d\u2019utiliser un dispositif \u00e9lectronique d\u2019aide \u00e0 la communication.<\/p>\n

Nous sommes conscients qu\u2019\u00e0 l\u2019avenir, Raf aura toujours besoin d\u2019un peu d\u2019aide. Mais nous savons que le Centre MAB-Mackay sera \u00e0 nos c\u00f4t\u00e9s pour la suite des choses. Cela nous rassure et nous remplit d\u2019espoir pour son futur.<\/p>\n

Vous avez toute ma gratitude.<\/p>\n

Yael
Fi\u00e8re maman de Rafael<\/p>\n

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Nous ne savions pas que le Centre de r\u00e9adaptation MAB-Mackay deviendrait notre bou\u00e9e de sauvetage, un endroit o\u00f9 des th\u00e9rapeutes d\u00e9vou\u00e9s transformeraient nos inqui\u00e9tudes en jalons.<\/p>\n","protected":false},"author":13,"featured_media":9737,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"footnotes":""},"categories":[26,64],"tags":[],"class_list":["post-9727","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-histoires-de-clientes","category-le-centre-de-readaptation-lethbridge-layton-mackay"],"yoast_head":"\nRafael - Fondation Habilitas Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/habilitas.ca\/fr\/rafael\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Rafael - 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