{"id":8642,"date":"2022-04-20T08:29:51","date_gmt":"2022-04-20T13:29:51","guid":{"rendered":"https:\/\/habilitas.ca\/non-classifiee\/sophia\/"},"modified":"2024-03-31T15:43:38","modified_gmt":"2024-03-31T15:43:38","slug":"sophia","status":"publish","type":"post","link":"https:\/\/habilitas.ca\/fr\/sophia\/","title":{"rendered":"Sophia"},"content":{"rendered":"

[et_pb_section fb_built=\u00a0\u00bb1″ _builder_version=\u00a0\u00bb4.16″ global_colors_info=\u00a0\u00bb{}\u00a0\u00bb da_is_popup=\u00a0\u00bboff\u00a0\u00bb da_exit_intent=\u00a0\u00bboff\u00a0\u00bb da_has_close=\u00a0\u00bbon\u00a0\u00bb da_alt_close=\u00a0\u00bboff\u00a0\u00bb da_dark_close=\u00a0\u00bboff\u00a0\u00bb da_not_modal=\u00a0\u00bbon\u00a0\u00bb da_is_singular=\u00a0\u00bboff\u00a0\u00bb da_with_loader=\u00a0\u00bboff\u00a0\u00bb da_has_shadow=\u00a0\u00bbon\u00a0\u00bb da_disable_devices=\u00a0\u00bboff|off|off\u00a0\u00bb][et_pb_row _builder_version=\u00a0\u00bb4.16″ background_size=\u00a0\u00bbinitial\u00a0\u00bb background_position=\u00a0\u00bbtop_left\u00a0\u00bb background_repeat=\u00a0\u00bbrepeat\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb4_4″ _builder_version=\u00a0\u00bb4.16″ custom_padding=\u00a0\u00bb|||\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb custom_padding__hover=\u00a0\u00bb|||\u00a0\u00bb][et_pb_text _builder_version=\u00a0\u00bb4.17.1″ global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n

Lorsque notre fille Sophia avait seulement quatre mois, nous avons remarqu\u00e9 que ses globes oculaires bougeaient presque constamment. \u00c0 la demande de ses m\u00e9decins et sp\u00e9cialistes, nous lui avons fait passer une IRM c\u00e9r\u00e9brale \u00e0 l\u2019h\u00f4pital.<\/p>\n

Le jour de l\u2019examen, les sp\u00e9cialistes ont trouv\u00e9 d\u2019importantes tumeurs inop\u00e9rables autour de son nerf optique. Cette dure nouvelle a chang\u00e9 notre vie \u00e0 jamais. \u00c0 ce moment, il \u00e9tait tr\u00e8s difficile d\u2019\u00e9valuer savision, et notre seul recours \u00e9tait de commencer imm\u00e9diatement la chimioth\u00e9rapie. Mais malheureusement, apr\u00e8s deux ans de traitements, la tumeur de Sophia a recommenc\u00e9 \u00e0 grossir. J\u2019aialors pri\u00e9 tr\u00e8s fort pour qu\u2019elle puisse conserver au moins une partie de sa vision fonctionnelle.<\/p>\n

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\n

Sachant que cette d\u00e9ficience visuelle affecterait le d\u00e9veloppement de Sophia, nous avons commenc\u00e9 une th\u00e9rapie au Centre MAB-Mackay lorsqu\u2019elle avait un an.<\/strong><\/p>\n<\/blockquote>\n

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Je me souviens que l\u2019\u00e9quipe du Centre l\u2019a \u00e9paul\u00e9e alors qu\u2019elle apprenait \u00e0 marcher, \u00e0 monter les escaliers et m\u00eame \u00e0 parler. En plus de lui apporter une aide inestimable pour sa vision, les sp\u00e9cialistes du Centre nous ont offert un pr\u00e9cieux soutien moral et nous ont encourag\u00e9es dans les moments les plus difficiles.<\/p>\n

Aujourd\u2019hui, Sophia a besoin de plus de temps que les autres enfants pour effectuer la plupart de ses t\u00e2ches. Lorsqu\u2019elle arrive \u00e0 l\u2019\u00e9cole le matin, elle n\u2019arrive pas \u00e0 courir avec les autres enfants. Souvent, elle reste en retrait. En raison de ses probl\u00e8mes de vision, Sophia ne peut savourer la vie de la m\u00eame fa\u00e7on que ses camarades. Et j\u2019ai quelquefois entendu des enfants l\u2019accuser de ne rien savoir\u2026<\/p>\n

\"2022-02-19-Sophia-min\"Sophia aura bient\u00f4t huit ans, mais je ne peux pas la laisser s\u2019\u00e9loigner de moi lorsque nous sommes \u00e0 l\u2019ext\u00e9rieur. Malheureusement, elle ne voit pas les voitures qui approchent dans la rue, et elle se perd facilement, surtout l\u2019hiver quand tout est blanc autour d\u2019elle. Souvent, lorsque ses amis la croisent sur la rue ou au parc, ils appellent son nom, mais elle ne les reconna\u00eet pas. Cela nous attriste toutes lesdeux.<\/p>\n

Malheureusement, Sophia a perdu l\u2019usage d\u2019un de ses deux yeux et ne voit que tr\u00e8s partiellement avec l\u2019autre. Mais je suis tr\u00e8s heureuse qu\u2019elle re\u00e7oive le soutien formidable des sp\u00e9cialistes du Centre MAB-Mackay. Ce sont des anges venus du ciel!<\/p>\n

Sophia r\u00eave de pouvoir bien voir un jour.
Je lui dis toujours que m\u00eame si elle n\u2019y parvient pas, elle a de nombreux outils et elle peut compter sur un soutien inestimable pour l\u2019aider dans tout ce qu\u2019elle voudra accomplir.<\/p>\n

C\u2019est gr\u00e2ce \u00e0 vous que tout cela est possible. Merci.<\/p>\n

Samaneh,
Une maman fi\u00e8re et reconnaissante<\/p>\n

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Lorsque notre fille Sophia avait seulement quatre mois, nous avons remarqu\u00e9 que ses globes oculaires bougeaient presque constamment. \u00c0 la demande de ses m\u00e9decins et sp\u00e9cialistes, nous lui avons fait passer une IRM c\u00e9r\u00e9brale \u00e0 l\u2019h\u00f4pital. Le jour de l\u2019examen, les sp\u00e9cialistes ont trouv\u00e9 d\u2019importantes tumeurs inop\u00e9rables autour de son nerf optique. Cette dure nouvelle […]<\/p>\n","protected":false},"author":13,"featured_media":8631,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"footnotes":""},"categories":[26],"tags":[],"class_list":["post-8642","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-histoires-de-clientes"],"yoast_head":"\nSophia - Fondation Habilitas Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/habilitas.ca\/sophia\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Sophia - Fondation Habilitas Foundation\" \/>\n<meta property=\"og:description\" content=\"Lorsque notre fille Sophia avait seulement quatre mois, nous avons remarqu\u00e9 que ses globes oculaires bougeaient presque constamment. \u00c0 la demande de ses m\u00e9decins et sp\u00e9cialistes, nous lui avons fait passer une IRM c\u00e9r\u00e9brale \u00e0 l\u2019h\u00f4pital. 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