{"id":4287,"date":"2019-11-21T11:33:16","date_gmt":"2019-11-21T16:33:16","guid":{"rendered":"https:\/\/habilitas.ca\/non-classifiee\/alynah\/"},"modified":"2019-11-25T09:35:59","modified_gmt":"2019-11-25T14:35:59","slug":"alynah","status":"publish","type":"post","link":"https:\/\/habilitas.ca\/fr\/alynah\/","title":{"rendered":"Alynah"},"content":{"rendered":"

[et_pb_section fb_built=\u00a0\u00bb1″ _builder_version=\u00a0\u00bb3.22″ fb_built=\u00a0\u00bb1″ bb_built=\u00a0\u00bb1″ _i=\u00a0\u00bb0″ _address=\u00a0\u00bb0″][et_pb_row _builder_version=\u00a0\u00bb3.25″ background_size=\u00a0\u00bbinitial\u00a0\u00bb background_position=\u00a0\u00bbtop_left\u00a0\u00bb background_repeat=\u00a0\u00bbrepeat\u00a0\u00bb _i=\u00a0\u00bb0″ _address=\u00a0\u00bb0.0″][et_pb_column type=\u00a0\u00bb4_4″ _builder_version=\u00a0\u00bb3.25″ custom_padding=\u00a0\u00bb|||\u00a0\u00bb _i=\u00a0\u00bb0″ _address=\u00a0\u00bb0.0.0″ custom_padding__hover=\u00a0\u00bb|||\u00a0\u00bb][et_pb_post_title meta=\u00a0\u00bboff\u00a0\u00bb featured_image=\u00a0\u00bboff\u00a0\u00bb _builder_version=\u00a0\u00bb3.27.3″ text_orientation=\u00a0\u00bbcenter\u00a0\u00bb _i=\u00a0\u00bb0″ _address=\u00a0\u00bb0.0.0.0″][\/et_pb_post_title][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=\u00a0\u00bb3.25″ background_size=\u00a0\u00bbinitial\u00a0\u00bb background_position=\u00a0\u00bbtop_left\u00a0\u00bb background_repeat=\u00a0\u00bbrepeat\u00a0\u00bb _i=\u00a0\u00bb1″ _address=\u00a0\u00bb0.1″][et_pb_column type=\u00a0\u00bb4_4″ _builder_version=\u00a0\u00bb3.25″ custom_padding=\u00a0\u00bb|||\u00a0\u00bb _i=\u00a0\u00bb0″ _address=\u00a0\u00bb0.1.0″ custom_padding__hover=\u00a0\u00bb|||\u00a0\u00bb][et_pb_text _builder_version=\u00a0\u00bb3.29.3″ hover_enabled=\u00a0\u00bb0″ _i=\u00a0\u00bb0″ _address=\u00a0\u00bb0.1.0.0″]<\/p>\n

Je me souviens encore du silence qui r\u00e9gnait dans la pi\u00e8ce lorsque notre p\u00e9diatre nous a annonc\u00e9 que notre petite fille \u00e9tait aveugle ou malvoyante.<\/strong> Le temps a sembl\u00e9 s\u2019arr\u00eater pendant que des centaines de questions se bousculaient dans nos t\u00eates.<\/p>\n

Alynah n\u2019avait que quelques semaines lorsque j\u2019ai remarqu\u00e9 qu\u2019elle n\u2019\u00e9tablissait pas de contact visuel pendant l\u2019allaitement. Rapidement, je me suis rendu compte que ses yeux semblaient s\u2019\u00e9garer.<\/p>\n

Cette p\u00e9riode a \u00e9t\u00e9 tr\u00e8s sombre pour moi, et j\u2019ai beaucoup pleur\u00e9. Comme maman, il m\u2019\u00e9tait tr\u00e8s douloureux de constater que mon b\u00e9b\u00e9 ne me regardait pas et ne me souriait pas. Ne pas \u00eatre en mesure d\u2019\u00e9tablir ce lien avec Alynah \u00e9tait tr\u00e8s difficile. J\u2019ai tent\u00e9 de me rassurer, esp\u00e9rant qu\u2019elle se d\u00e9veloppait simplement \u00e0 un rythme diff\u00e9rent de celui de son grand fr\u00e8re.<\/p>\n

J\u2019ai rapidement fait part de mes pr\u00e9occupations \u00e0 notre p\u00e9diatre. Apr\u00e8s quelques tests, elle a prononc\u00e9 ces paroles qui ont chang\u00e9 notre vie \u00e0 tout jamais.<\/p>\n

Apr\u00e8s une semaine d\u2019attente qui m\u2019a paru \u00eatre une \u00e9ternit\u00e9, nous avons obtenu un rendez-vous au service d\u2019ophtalmologie de l\u2019H\u00f4pital de Montr\u00e9al pour enfants. On a diagnostiqu\u00e9 \u00e0 Alynah une forme d\u2019albinisme oculocutan\u00e9, une condition g\u00e9n\u00e9tique rare qui cause une myopie ou une hyperm\u00e9tropie s\u00e9v\u00e8re, une faible perception de la profondeur et une grande sensibilit\u00e9 \u00e0 la lumi\u00e8re.<\/p>\n

J\u2019ai su imm\u00e9diatement que j\u2019aurais besoin d\u2019une recommandation pour le MAB-Mackay.<\/p>\n

\u00c9lever un enfant avec une d\u00e9ficience visuelle est une source quotidienne d\u2019anxi\u00e9t\u00e9, d\u2019inqui\u00e9tude et de crainte. La peur de l\u2019inconnu est extraordinaire lorsque vous ne comprenez pas vraiment ce que vit votre enfant. D\u00e8s notre premi\u00e8re rencontre au MAB-Mackay, nous avons \u00e9t\u00e9 soulag\u00e9s d\u2019\u00eatre entour\u00e9s d\u2019un groupe de professionnels formidables qui sont form\u00e9s pour prendre soin d\u2019enfants comme Alynah.<\/p>\n

\"\"D\u00e8s que nous avons franchi les portes du centre, nous avons \u00e9t\u00e9 soutenus pour faire face \u00e0 chaque obstacle et d\u00e9fi, pour encourager Alynah. Le personnel comprenait pourquoi Alynah ne s\u2019aventurait pas au-del\u00e0 de la petite zone de confort qu\u2019elle pouvait voir. Si Alynah ne pouvait pas voir les indices (par exemple ses parents ou ses jouets), elle n\u2019avait pas la curiosit\u00e9 d\u2019aller vers eux pour les atteindre. Par cons\u00e9quent, d\u2019autres aspects de son d\u00e9veloppement pouvaient \u00eatre retard\u00e9s.<\/p>\n

Sachant que la vision alimente 80\u00a0% de l\u2019apprentissage pr\u00e9coce, les th\u00e9rapies du MAB-Mackay visaient d\u2019abord \u00e0 encourager Alynah \u00e0 explorer son environnement au-del\u00e0 de ses limites. Le personnel nous a m\u00eame rendu visite \u00e0 la maison, pour nous aider \u00e0 offrir \u00e0 Alynah un environnement s\u00e9curitaire et pour organiser notre int\u00e9rieur de fa\u00e7on \u00e0 favoriser son d\u00e9veloppement et l\u2019exploration.<\/p>\n

J\u2019ai des frissons quand je pense aux progr\u00e8s qu\u2019elle a fait en si peu de temps. En d\u00e9but de th\u00e9rapie, elle ne rampait m\u00eame pas. En peu de temps, elle a appris \u00e0 se tenir debout, \u00e0 s\u2019orienter et \u00e0 d\u00e9ambuler. La plupart des enfants atteints de cette condition ne franchissent ces \u00e9tapes que bien plus tard. L\u2019\u00e9quipe et les ressources du MAB-Mackay sont responsables de cette extraordinaire progression.<\/p>\n

Maintenant qu\u2019Alynah pouvait marcher, nous avons rencontr\u00e9 des d\u00e9fis compl\u00e8tement diff\u00e9rents. Elle a commenc\u00e9 sa qu\u00eate d\u2019ind\u00e9pendance, souvent de fa\u00e7on non s\u00e9curitaire et impr\u00e9visible. En raison de son manque de perception de la profondeur, elle s\u2019est lanc\u00e9e dans l\u2019escalier de notre maison.<\/p>\n

Heureusement pour nous, elle ne s\u2019est pas bless\u00e9e. Un sp\u00e9cialiste du MAB-Mackay a montr\u00e9 \u00e0 Alynah comment utiliser ses autres sens pour emprunter les escaliers, par exemple en touchant les marches avec son pied, en posant la main sur le mur, en \u00e9coutant les indices auditifs comme le bruit de ses souliers sur le plancher. Comme parents, nous avons \u00e9galement appris le d\u00e9licat \u00e9quilibre entre soutenir son besoin d\u2019ind\u00e9pendance et assurer sa s\u00e9curit\u00e9.<\/p>\n

Malgr\u00e9 ces progr\u00e8s extraordinaires, Alynah ne parlait toujours pas. \u00c0 l\u2019\u00e2ge de 15 mois, elle ne disait m\u00eame pas encore \u00ab maman \u00bb. Il devenait difficile de pourvoir aux besoins d\u2019Alynah avec tr\u00e8s peu de vocabulaire. De surcro\u00eet, sa frustration devenait de plus en plus \u00e9vidente. Nous avons rapidement reconnu que ce retard \u00e9tait d\u00fb \u00e0 son incapacit\u00e9 \u00e0 voir comment nous formions des sons avec notre bouche. Notre orthophoniste du MAB-Mackay nous a donn\u00e9 des conseils importants qui ont permis \u00e0 Alynah de nous imiter. J\u2019ai commenc\u00e9 \u00e0 porter du rouge \u00e0 l\u00e8vres rouge vif et \u00e0 poser sa main sur mes l\u00e8vres pour qu\u2019elle puisse sentir comment je formais des sons.<\/p>\n

Toutes ces strat\u00e9gies ont permis \u00e0 Alynah de rayonner et de d\u00e9montrer tout ce dont elle est capable, malgr\u00e9 sa d\u00e9ficience visuelle.<\/p>\n

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Sachant que la vision alimente 80 % de l\u2019apprentissage pr\u00e9coce, les th\u00e9rapies du MAB-Mackay visaient d\u2019abord \u00e0 encourager Alynah \u00e0 explorer son environnement au-del\u00e0 de ses limites.<\/strong><\/p>\n<\/blockquote>\n

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Notre histoire ne s\u2019arr\u00eate pas l\u00e0.<\/p>\n

Alynah est comme la plupart des enfants de son \u00e2ge. \u00c0 deux ans et demi, elle est pleine d\u2019\u00e9nergie et de caract\u00e8re. Elle adore jouer, passer du temps dehors (avec un \u00e9cran solaire et des lunettes de soleil) et jouer avec ses deux chiens, Snoopy et Pancake.<\/p>\n

La d\u00e9ficience d\u2019Alynah est invisible, mais toujours pr\u00e9sente. Parce qu\u2019elle ressemble aux autres enfants de son \u00e2ge, il est difficile de percevoir ses difficult\u00e9s. De simples t\u00e2ches que les autres enfants tiennent pour acquises sont difficiles pour elle. Elle peut \u00e9galement se sentir d\u00e9pass\u00e9e par les stimuli qui l\u2019entourent comme les grands bruits, les mouvements et les \u00e9trangers. Alors qu\u2019elle se pr\u00e9pare \u00e0 entrer \u00e0 la garderie l\u2019an prochain, il est rassurant de pouvoir compter sur le MAB-Mackay pour aider notre fille \u00e0 faire face aux d\u00e9fis qui l\u2019attendent en grandissant.<\/p>\n

De tout c\u0153ur,<\/p>\n

Rebekah, fi\u00e8re maman d\u2019Alynah<\/p>\n

P.S. Le MAB-Mackay nous a montr\u00e9 \u2013 \u00e0 nous et \u00e0 Alynah \u2013 qu\u2019il n\u2019y avait rien d\u2019impossible pour les enfants qui sont aveugles au sens de la loi. Comme parent, cela n\u2019a pas de prix. Merci de transformer la vie d\u2019Alynah, et la vie de tant d\u2019autres personnes qui fr\u00e9quentent le MAB-Mackay chaque jour!<\/em><\/p>\n

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Je me souviens encore du silence qui r\u00e9gnait dans la pi\u00e8ce lorsque notre p\u00e9diatre nous a annonc\u00e9 que notre petite fille \u00e9tait aveugle ou malvoyante. Le temps a sembl\u00e9 s\u2019arr\u00eater pendant que des centaines de questions se bousculaient dans nos t\u00eates. Alynah n\u2019avait que quelques semaines lorsque j\u2019ai remarqu\u00e9 qu\u2019elle n\u2019\u00e9tablissait pas de contact visuel […]<\/p>\n","protected":false},"author":13,"featured_media":4282,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"footnotes":""},"categories":[26],"tags":[],"class_list":["post-4287","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-histoires-de-clientes"],"yoast_head":"\nAlynah - Fondation Habilitas Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/habilitas.ca\/fr\/alynah\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Alynah - Fondation Habilitas Foundation\" \/>\n<meta property=\"og:description\" content=\"Je me souviens encore du silence qui r\u00e9gnait dans la pi\u00e8ce lorsque notre p\u00e9diatre nous a annonc\u00e9 que notre petite fille \u00e9tait aveugle ou malvoyante. 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