{"id":3833,"date":"2019-08-28T10:41:52","date_gmt":"2019-08-28T15:41:52","guid":{"rendered":"https:\/\/habilitas.ca\/maryam\/"},"modified":"2019-08-30T10:23:24","modified_gmt":"2019-08-30T15:23:24","slug":"maryam","status":"publish","type":"post","link":"https:\/\/habilitas.ca\/fr\/maryam\/","title":{"rendered":"Maryam"},"content":{"rendered":"

[et_pb_section fb_built=\u00a0\u00bb1″ _builder_version=\u00a0\u00bb3.22″ fb_built=\u00a0\u00bb1″ bb_built=\u00a0\u00bb1″ _i=\u00a0\u00bb0″ _address=\u00a0\u00bb0″][et_pb_row _builder_version=\u00a0\u00bb3.25″ background_size=\u00a0\u00bbinitial\u00a0\u00bb background_position=\u00a0\u00bbtop_left\u00a0\u00bb background_repeat=\u00a0\u00bbrepeat\u00a0\u00bb _i=\u00a0\u00bb0″ _address=\u00a0\u00bb0.0″][et_pb_column type=\u00a0\u00bb4_4″ _builder_version=\u00a0\u00bb3.25″ custom_padding=\u00a0\u00bb|||\u00a0\u00bb _i=\u00a0\u00bb0″ _address=\u00a0\u00bb0.0.0″ custom_padding__hover=\u00a0\u00bb|||\u00a0\u00bb][et_pb_post_title meta=\u00a0\u00bboff\u00a0\u00bb featured_image=\u00a0\u00bboff\u00a0\u00bb _builder_version=\u00a0\u00bb3.27.3″ text_orientation=\u00a0\u00bbcenter\u00a0\u00bb _i=\u00a0\u00bb0″ _address=\u00a0\u00bb0.0.0.0″][\/et_pb_post_title][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=\u00a0\u00bb3.25″ background_size=\u00a0\u00bbinitial\u00a0\u00bb background_position=\u00a0\u00bbtop_left\u00a0\u00bb background_repeat=\u00a0\u00bbrepeat\u00a0\u00bb _i=\u00a0\u00bb1″ _address=\u00a0\u00bb0.1″][et_pb_column type=\u00a0\u00bb4_4″ _builder_version=\u00a0\u00bb3.25″ custom_padding=\u00a0\u00bb|||\u00a0\u00bb _i=\u00a0\u00bb0″ _address=\u00a0\u00bb0.1.0″ custom_padding__hover=\u00a0\u00bb|||\u00a0\u00bb][et_pb_text _builder_version=\u00a0\u00bb3.27.3″ hover_enabled=\u00a0\u00bb0″ _i=\u00a0\u00bb0″ _address=\u00a0\u00bb0.1.0.0″]<\/p>\n

Je n\u2019oublierai jamais cette journ\u00e9e ni le vide que j\u2019ai ressenti.<\/strong><\/p>\n

Quand je me suis assise sur la chaise du sp\u00e9cialiste de la vue, il m\u2019a tendu une bo\u00eete de mouchoirs et m\u2019a annonc\u00e9 la nouvelle\u00a0: je devenais lentement aveugle.<\/p>\n

\u00ab\u00a0Tu vas devoir abandonner tes activit\u00e9s autonomes, m\u2019a dit le m\u00e9decin. L\u2019\u00e9cole sera trop difficile et tu auras du mal \u00e0 trouver un petit ami\u00a0\u00bb, a-t-il ajout\u00e9. J\u2019ai pos\u00e9 quelques questions, cherchant un espoir auquel m\u2019accrocher. \u00ab\u00a0Pourquoi devrais-je placer une sentence de mort au-dessus de ta t\u00eate?\u00a0\u00bb m\u2019a-t-il r\u00e9pondu.<\/p>\n

En quittant le bureau du m\u00e9decin, je me souviens de ne pas avoir regard\u00e9 des deux c\u00f4t\u00e9s de la rue avant de la traverser. \u00c7a n\u2019avait plus d\u2019importance.<\/p>\n

Ce soir-l\u00e0, en allant me coucher, j\u2019ai eu peur de fermer les yeux, par crainte de ne plus rien voir \u00e0 mon r\u00e9veil le lendemain matin.<\/p>\n

Cette nouvelle r\u00e9alit\u00e9 tranchait nettement avec ma personnalit\u00e9. J\u2019avais toujours \u00e9t\u00e9 fonceuse, ambitieuse et positive. Je plongeais t\u00eate premi\u00e8re dans la vie.<\/p>\n

Adolescente, mes probl\u00e8mes de vision se limitaient \u00e0 ne pas distinguer certaines couleurs comme brun et violet, ou gris et lilas. Ce n\u2019\u00e9tait pas bien important.<\/p>\n

\u00c0 21\u00a0ans, alors que j\u2019\u00e9tais en voyage spontan\u00e9 en sac \u00e0 dos avec une amie en Gr\u00e8ce, j\u2019ai remarqu\u00e9 pour la premi\u00e8re fois que j\u2019avais des probl\u00e8mes. \u00c9tant dans un environnement inconnu, je marchais plus lentement, je faisais plus attention et je penchais beaucoup plus la t\u00eate vers le sol. Faire la diff\u00e9rence entre des marches et des surfaces plates ou encore voir dans le noir devenait plus difficile.<\/p>\n

Lorsque je suis rentr\u00e9e \u00e0 la maison apr\u00e8s mon voyage, j\u2019ai commenc\u00e9 \u00e0 sentir que je perdais mon sens de l\u2019autonomie. J\u2019avais l\u2019habitude de sortir avec des amis pour prendre un caf\u00e9, magasiner, rire. Maintenant, ma zone de confort devenait lentement plus restreinte.<\/p>\n

Je ne voulais pas que les gens me voient tr\u00e9bucher et avoir l\u2019air maladroite, je ne m\u2019\u00e9loignais donc pas trop de la maison. Pendant un certain temps, j\u2019ai continu\u00e9 d\u2019aller au gym, car j\u2019aimais m\u2019entra\u00eener, mais j\u2019utilisais toujours le m\u00eame appareil pour \u00eatre plus en s\u00e9curit\u00e9. J\u2019ai tent\u00e9 d\u2019aller \u00e0 un rendez-vous
galant, mais j\u2019ai \u00e9t\u00e9 g\u00ean\u00e9e de tenir le menu \u00e0 l\u2019envers et je me suis perdue en revenant de la salle de bain.<\/p>\n

Rapidement, mon parcours a men\u00e9 \u00e0 un diagnostic de r\u00e9tinite pigmentaire, une maladie g\u00e9n\u00e9tique qui provoque la perte de la vision p\u00e9riph\u00e9rique de m\u00eame que des probl\u00e8mes de perception de la profondeur et de sensibilit\u00e9 \u00e0 la lumi\u00e8re. J\u2019ai senti que mon monde se refermait sur moi et que je me r\u00e9signais.<\/p>\n

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\n

Alors que je sombrais dans la d\u00e9pression, j\u2019ai d\u00e9cid\u00e9 qu\u2019il me restait un choix : je pouvais abandonner ou continuer \u00e0 avancer. Il \u00e9tait temps de repartir \u00e0 z\u00e9ro.
<\/strong><\/p>\n<\/blockquote>\n

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J\u2019ai commenc\u00e9 \u00e0 fouiller sur Internet, cherchant d\u00e9sesp\u00e9r\u00e9ment des histoires de r\u00e9ussites de personnes ayant cette maladie. L\u2019histoire d\u2019April Lufriu, qui a remport\u00e9 le concours Mrs. America en 2011 et le concours Mrs. World l\u2019ann\u00e9e suivante, m\u2019a inspir\u00e9e. Je lui ai \u00e9crit un courriel et elle m\u2019a r\u00e9pondu en me parlant de son exp\u00e9rience avec des paroles d\u2019espoir et d\u2019encouragement. \u00ab\u00a0\u00c7a me fait chaud au c\u0153ur en fait de constater \u00e0 quel point tu es positive et que la vie ne g\u00e2chera pas tes projets de bonheur, m\u2019a-t-elle r\u00e9pondu. On appelle \u00e7a l\u2019ESPOIR!\u00a0\u00bb<\/p>\n

C\u2019est \u00e0 peu pr\u00e8s \u00e0 cette \u00e9poque qu\u2019on m\u2019a sugg\u00e9r\u00e9 de communiquer avec le MAB-Mackay, et je suis vraiment ravie de l\u2019avoir fait. C\u2019\u00e9tait comme un tout nouveau d\u00e9part pour moi.<\/p>\n

Tout le monde a \u00e9t\u00e9 tellement accueillant et pr\u00eat \u00e0 faire un petit extra pour m\u2019aider \u00e0 trouver des solutions \u00e0 tous les d\u00e9fis auxquels je faisais face. Ils m\u2019ont permis de me sentir en s\u00e9curit\u00e9 et comprise.<\/p>\n

Parmi les personnes sp\u00e9ciales que j\u2019ai rencontr\u00e9es au MAB-Mackay se trouve Kate qui m\u2019a enseign\u00e9 \u00e0 me d\u00e9placer avec une canne blanche. C\u2019\u00e9tait une \u00e9tape importante, car cela signifiait exposer ma vuln\u00e9rabilit\u00e9 aux autres. Je voulais toutefois briser mon isolement, j\u2019ai donc adopt\u00e9 la canne, qui est devenue un symbole de transformation. En formation, pour m\u2019obliger \u00e0 sortir de ma zone de confort, j\u2019ai choisi une des parties les plus exigeantes de la ville qui comprenait la station de m\u00e9tro Berri- UQAM et les rues pav\u00e9es du Vieux-Port. C\u2019est g\u00e9nial de pouvoir dor\u00e9navant de nouveau me d\u00e9placer seule en ville, maintenant que j\u2019ai plus confiance en ma mobilit\u00e9.<\/p>\n

C\u2019est Sara qui m\u2019a aid\u00e9e \u00e0 me r\u00e9ajuster pour mes \u00e9tudes. Quand je lui ai dit que je voulais abandonner l\u2019\u00e9cole, car je ne pouvais plus lire, elle m\u2019a aid\u00e9 \u00e0 trouver des solutions. Elle m\u2019a donn\u00e9 un cours de 6\u00a0mois en braille int\u00e9gral, une exp\u00e9rience qu\u2019elle a rendue fort amusante. J\u2019ai ainsi pu \u00e9prouver un v\u00e9ritable sentiment d&#39;accomplissement, et c\u2019est maintenant tr\u00e8s utile dans mes pr\u00e9sentations puisque je suis de retour \u00e0 l\u2019universit\u00e9.<\/p>\n

D\u2019autres sp\u00e9cialistes du MAB-Mackay m\u2019ont aid\u00e9 \u00e0 acqu\u00e9rir des techniques ind\u00e9pendantes en cuisine et \u00e0 r\u00e9organiser l\u2019\u00e9clairage chez moi pour que je puisse mieux fonctionner. Ils m\u2019ont enseign\u00e9 plusieurs trucs et m\u2019ont montr\u00e9 des applications particuli\u00e8res sur mon t\u00e9l\u00e9phone intelligent. De plus, ils m\u2019ont guid\u00e9 vers une carri\u00e8re de r\u00eave en m\u2019aidant \u00e0 voir des qualit\u00e9s et des habilet\u00e9s professionnelles que je ne pensais pas avoir.<\/p>\n

J\u2019ai tellement appris au MAB-Mackay, et j\u2019ai depuis repris confiance et je vois de nouveau la vie de fa\u00e7on positive. Le personnel m\u2019a montr\u00e9 que tout est possible, m\u00eame avec ma perte de vision. J\u2019ai commenc\u00e9 \u00e0 pratiquer le kickboxing et je termine un certificat en relations publiques et un autre en entrepreneuriat \u00e0 McGill. J\u2019ai aussi commenc\u00e9 \u00e0 m\u2019exercer \u00e0 l\u2019art oratoire. Mon objectif est de lancer ma propre entreprise de coach de vie.<\/p>\n

Sans vous, rien de tout cela n\u2019aurait \u00e9t\u00e9 possible!<\/strong><\/p>\n

Alors me voici ici aujourd\u2019hui. Je suis aveugle au sens de la loi. J\u2019arrive seulement \u00e0 voir ce qui se trouve \u00e0 mes c\u00f4t\u00e9s et non pas directement devant moi. Personne ne sait si je vais perdre compl\u00e8tement la vue, et le temps que cela pourrait prendre. Je refuse toutefois que cela m\u2019emp\u00eache de r\u00e9aliser mes r\u00eaves. Ma vision de la vie est dor\u00e9navant claire, et je sais que le MAB-Mackay m\u2019accompagnera dans ette voie.<\/p>\n

Avec mes remerciements chaleureux,<\/p>\n

Maryam, 29 ans et la t\u00eate emplie de r\u00eaves<\/p>\n

[\/et_pb_text][et_pb_button button_url=\u00a0\u00bbhttps:\/\/habilitas.ca\/fr\/nos-histoires\/\u00a0\u00bb button_text=\u00a0\u00bbAutres histoires\u00a0\u00bb button_alignment=\u00a0\u00bbleft\u00a0\u00bb admin_label=\u00a0\u00bbMore Stories\u00a0\u00bb _builder_version=\u00a0\u00bb3.27.3″ hover_enabled=\u00a0\u00bb0″ _i=\u00a0\u00bb1″ _address=\u00a0\u00bb0.3.0.1″][\/et_pb_button][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=\u00a0\u00bb1″ _builder_version=\u00a0\u00bb3.22″ background_color=\u00a0\u00bbrgba(68,205,207,0.3)\u00a0\u00bb custom_margin=\u00a0\u00bb||0px|\u00a0\u00bb custom_padding=\u00a0\u00bb||0px|\u00a0\u00bb fb_built=\u00a0\u00bb1″ _i=\u00a0\u00bb0″ _address=\u00a0\u00bb0″][et_pb_row _builder_version=\u00a0\u00bb3.25″ background_size=\u00a0\u00bbinitial\u00a0\u00bb background_position=\u00a0\u00bbtop_left\u00a0\u00bb background_repeat=\u00a0\u00bbrepeat\u00a0\u00bb _i=\u00a0\u00bb0″ _address=\u00a0\u00bb0.0″ column_structure=\u00a0\u00bb1_4,1_4,1_4,1_4″][et_pb_column type=\u00a0\u00bb1_4″ _builder_version=\u00a0\u00bb3.25″ custom_padding=\u00a0\u00bb|||\u00a0\u00bb _i=\u00a0\u00bb0″ _address=\u00a0\u00bb0.0.0″ custom_padding__hover=\u00a0\u00bb|||\u00a0\u00bb][et_pb_signup provider=\u00a0\u00bbconstant_contact\u00a0\u00bb constant_contact_list=\u00a0\u00bbHABILITAS Website|1116831926″ first_name_field=\u00a0\u00bboff\u00a0\u00bb last_name_field=\u00a0\u00bboff\u00a0\u00bb title=\u00a0\u00bbInscrivez-vous \u00e0 notre infolettre\u00a0\u00bb button_text=\u00a0\u00bbS\u2019abonner\u00a0\u00bb admin_label=\u00a0\u00bbEmail Option\u00a0\u00bb _builder_version=\u00a0\u00bb3.23″ header_font=\u00a0\u00bb|600|||||||\u00a0\u00bb header_text_color=\u00a0\u00bb#313175″ header_font_size=\u00a0\u00bb18″ use_background_color=\u00a0\u00bboff\u00a0\u00bb border_radii_fields=\u00a0\u00bbon|50px|50px|50px|50px\u00a0\u00bb background_layout=\u00a0\u00bblight\u00a0\u00bb _i=\u00a0\u00bb0″ _address=\u00a0\u00bb0.0.0.0″][\/et_pb_signup][\/et_pb_column][et_pb_column type=\u00a0\u00bb1_4″ _builder_version=\u00a0\u00bb3.25″ custom_padding=\u00a0\u00bb|||\u00a0\u00bb _i=\u00a0\u00bb1″ _address=\u00a0\u00bb0.0.1″ custom_padding__hover=\u00a0\u00bb|||\u00a0\u00bb][et_pb_text _builder_version=\u00a0\u00bb3.19.10″ text_font_size=\u00a0\u00bb14px\u00a0\u00bb header_4_font=\u00a0\u00bb|600|||||||\u00a0\u00bb _i=\u00a0\u00bb0″ _address=\u00a0\u00bb0.0.1.0″]<\/p>\n

Foundation<\/h4>\n

Nos histoires<\/a>
\u00c9v\u00e9nements<\/a>
Supports HABILITAS<\/a>
Notre \u00e9quipe<\/a>
Communiquez avec nous<\/a><\/p>\n

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Faire un don<\/h4>\n

Don en ligne<\/a>
Fa\u00e7ons de faire un don<\/a>
Impliquez-vous<\/a><\/p>\n

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Facebook<\/p>\n

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LinkedIn<\/p>\n

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Instagram<\/p>\n

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Web Design Sparrow Digital<\/a><\/span><\/p>\n

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Je n\u2019oublierai jamais cette journ\u00e9e ni le vide que j\u2019ai ressenti. Quand je me suis assise sur la chaise du sp\u00e9cialiste de la vue, il m\u2019a tendu une bo\u00eete de mouchoirs et m\u2019a annonc\u00e9 la nouvelle\u00a0: je devenais lentement aveugle. \u00ab\u00a0Tu vas devoir abandonner tes activit\u00e9s autonomes, m\u2019a dit le m\u00e9decin. 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