{"id":244687,"date":"2024-10-21T08:09:59","date_gmt":"2024-10-21T13:09:59","guid":{"rendered":"https:\/\/habilitas.ca\/jennifer\/"},"modified":"2025-04-04T08:36:22","modified_gmt":"2025-04-04T13:36:22","slug":"jennifer","status":"publish","type":"post","link":"https:\/\/habilitas.ca\/fr\/jennifer\/","title":{"rendered":"Jennifer"},"content":{"rendered":"

Imaginez un instant que vous ne soyez plus capable de lire cette lettre
\nni de voir les couleurs sur ma photo.<\/strong><\/p>\n

Tout a commenc\u00e9 il y a quatre ans et demi environ, par une froide matin\u00e9e d\u2019hiver. Alors que je me maquillais devant le miroir, j\u2019ai remarqu\u00e9 quelque chose d\u2019\u00e9trange : je n\u2019arrivais pas \u00e0 me voir clairement avec mon \u0153il droit.<\/p>\n

Durant les semaines qui ont suivi, tout est devenu de plus en plus flou.<\/p>\n

C\u2019\u00e9tait la premi\u00e8re fois que j\u2019\u00e9prouvais des probl\u00e8mes de vision. Je suis donc all\u00e9e voir un ophtalmologiste, qui m\u2019a rassur\u00e9e en me disant que c\u2019\u00e9tait probablement un effet secondaire d\u2019un m\u00e9dicament. Il m\u2019a sugg\u00e9r\u00e9 d\u2019arr\u00eater ma m\u00e9dication pendant quelques semaines, le temps que le probl\u00e8me se r\u00e9sorbe.<\/p>\n

Mais le probl\u00e8me a empir\u00e9.<\/p>\n

Le flou dans mon \u0153il droit a rapidement commenc\u00e9 \u00e0 gagner mon autre \u0153il aussi. Au bout de quelques semaines, j\u2019ai perdu ma vision centrale, ne gardant que ma vision p\u00e9riph\u00e9rique. J\u2019ai aussi commenc\u00e9 \u00e0 avoir du mal \u00e0 distinguer les couleurs. Je ne voyais que des tons de noir et de blanc.<\/p>\n

La peur et la panique sont devenues mon quotidien.<\/em><\/p>\n

Il faut dire que ce probl\u00e8me tombait au pire moment. Mon ex-mari et moi \u00e9tions en pleine s\u00e9paration, et je devais rester forte, tant pour moi-m\u00eame que pour mes deux fils adolescents. En plus de tout cela, je venais de recevoir une promotion au travail, ce qui veut dire que je devais donner le meilleur de moi-m\u00eame.<\/p>\n

Je priais pour que ma vision revienne. D\u00e9sesp\u00e9r\u00e9e, j\u2019ai essay\u00e9 diff\u00e9rents suppl\u00e9ments de vitamines et m\u00eame des traitements holistiques. J\u2019ai pass\u00e9 une panoplie de scans et d\u2019examens. J\u2019ai pass\u00e9 16 jours \u00e0 l\u2019h\u00f4pital pour plus de tests durantla pand\u00e9mie, alors que les visites \u00e9taient interdites en raison des protocoles d\u2019isolement. Mais j\u2019en suis ressortie sans diagnostic. Mon cas \u00e9tait un myst\u00e8re.<\/p>\n

Puis, en plein milieu de l\u2019\u00e9t\u00e9, mon diagnostic est finalement tomb\u00e9. J\u2019ai appris que je suis atteinte d\u2019une condition g\u00e9n\u00e9tique rare qu\u2019on appelle la \u00ab neuropathie optique h\u00e9r\u00e9ditaire de Leber \u00bb.<\/p>\n

Cette nouvelle m\u2019a boulevers\u00e9e.<\/p>\n

Oui, c\u2019\u00e9tait un soulagement de pouvoir mettre un nom sur ce qui m\u2019arrivait. Mais j\u2019ai aussi appris que cette condition est incurable et qu\u2019il n\u2019y pas de traitements.<\/p>\n

Quand j\u2019ai appris que j\u2019allais devenir aveugle au sens de la loi, j\u2019avais la t\u00eate pleine de questions sur mon avenir. Je me demandais si j\u2019allais pouvoir continuer \u00e0 tenir ma maison, \u00e0 faire l\u2019\u00e9picerie, \u00e0 cuisiner, \u00e0 aider mes fils dans leurs \u00e9tudes, \u00e0 travailler… Et qui allait m\u2019aider \u00e0 traverser cette \u00e9preuve? Y avait-il seulement une lumi\u00e8re au bout de ce tunnel?<\/p>\n

C\u2019est \u00e0 ce moment-l\u00e0 que mon ophtalmologiste m\u2019a parl\u00e9 du Centre MAB-Mackay pour la premi\u00e8re fois. \u00c9tant donn\u00e9 que je ne connaissais aucune autre personne aveugle ou ayant une d\u00e9ficience visuelle, je n\u2019avais jamais entendu parler de cet \u00e9tablissement. J\u2019ai vite d\u00e9couvert \u00e0 quel point nous sommes chanceux d\u2019avoir un endroit comme celui-l\u00e0 \u00e0 Montr\u00e9al.<\/p>\n

Je ne me doutais pas que la r\u00e9adaptation visuelle pouvait faire des merveilles.<\/em><\/p>\n

L\u2019\u00e9quipe de sp\u00e9cialistes du MAB-Mackay a fait un travail incroyable et m\u2019a donn\u00e9 des strat\u00e9gies, des conseils et des outils pour bien m\u2019adapter et relever les d\u00e9fis de la perte de vision. J\u2019ai \u00e9t\u00e9 touch\u00e9e par leur compassion, leur compr\u00e9hension et leur expertise.<\/p>\n

L\u2019une de mes plus grandes craintes \u00e9tait de devenir d\u00e9pendante de mes enfants pour les t\u00e2ches du quotidien. Heureusement, cette crainte a fait place \u00e0 l\u2019optimisme, car j\u2019ai d\u00e9couvert de nouvelles fa\u00e7ons d\u2019effectuer les activit\u00e9s quotidiennes que j\u2019avais toujours tenues pour acquises.<\/p>\n

Par exemple, les sp\u00e9cialistes du MAB-Mackay m\u2019ont montr\u00e9 \u00e0 pr\u00e9parer des repas pour ma famille de fa\u00e7on autonome et s\u00e9curitaire. Ils m\u2019ont aussi montr\u00e9 une technologie qui agrandit le texte pour me permettre de lire, en plus de m\u2019enseigner \u00e0 utiliser un logiciel qui me permet de g\u00e9rer mes finances, de naviguer sur Internet et m\u00eame de vous \u00e9crire cette lettre.<\/p>\n

Sortir de chez moi de fa\u00e7on autonome a \u00e9t\u00e9 une autre \u00e9tape importante. Vous vous doutez bien que quand on ne voit qu\u2019un brouillard, il est facile de tr\u00e9bucher, de se cogner contre des objets et de se perdre. Heureusement, les instructeurs sp\u00e9cialis\u00e9s du Centre MAB-Mackay m\u2019ont enseign\u00e9 \u00e0 utiliser les escaliers, \u00e0 traverser la rue et \u00e0 marcher dans mon quartier sans compromettre ma s\u00e9curit\u00e9. Apr\u00e8s plusieurs semaines d\u2019entra\u00eenement, je suis maintenant en mesure de marcher seule et de promener mon chien. Je peux m\u00eame marcher jusqu\u2019au gym!<\/p>\n

Les sp\u00e9cialistes du MAB-Mackay ont vu mon potentiel et m\u2019ont donn\u00e9 des outils pour maximiser mon autonomie. Ils m\u2019ont aid\u00e9e \u00e0 redonner un sens \u00e0 ma vie.<\/p>\n

Sans votre soutien, rien de tout cela n\u2019aurait \u00e9t\u00e9 possible.<\/p>\n

Je sais que je peux compter sur le Centre MAB-Mackay pour m\u2019aider \u00e0 surmonter les d\u00e9fis qui se pr\u00e9sentent dans ma vie, et je n\u2019ai pas de mots pour vous dire \u00e0 quel point c\u2019est rassurant.<\/p>\n

Merci de m\u2019avoir redonn\u00e9 l\u2019espoir, la dignit\u00e9 et le bonheur.<\/p>\n

Jennifer
\nFi\u00e8re cliente du Centre MAB-Mackay<\/p>\n","protected":false},"excerpt":{"rendered":"

Imaginez un instant que vous ne soyez plus capable de lire cette lettre ni de voir les couleurs sur ma photo. Tout a commenc\u00e9 il y a quatre ans et demi environ, par une froide matin\u00e9e d\u2019hiver. Alors que je me maquillais devant le miroir, j\u2019ai remarqu\u00e9 quelque chose d\u2019\u00e9trange : je n\u2019arrivais pas \u00e0 […]<\/p>\n","protected":false},"author":13,"featured_media":244681,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"footnotes":""},"categories":[26,64],"tags":[],"class_list":["post-244687","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-histoires-de-clientes","category-le-centre-de-readaptation-lethbridge-layton-mackay"],"yoast_head":"\nJennifer - Fondation Habilitas Foundation<\/title>\n<meta name=\"description\" content=\"One of my biggest fears was that I\u2019d become dependent on my children to do things for me. 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