{"id":1786,"date":"2018-01-16T21:34:04","date_gmt":"2018-01-17T02:34:04","guid":{"rendered":"http:\/\/habilitas.ca\/ainsley-at-11\/"},"modified":"2025-10-28T12:23:31","modified_gmt":"2025-10-28T17:23:31","slug":"ainsley-at-11","status":"publish","type":"post","link":"https:\/\/habilitas.ca\/fr\/ainsley-at-11\/","title":{"rendered":"Ainsley"},"content":{"rendered":"

[et_pb_section bb_built=\u00a0\u00bb1″ next_background_color=\u00a0\u00bbrgba(68,205,207,0.3)\u00a0\u00bb][et_pb_row][et_pb_column type=\u00a0\u00bb4_4″][et_pb_post_title _builder_version=\u00a0\u00bb3.19.9″ meta=\u00a0\u00bboff\u00a0\u00bb featured_image=\u00a0\u00bboff\u00a0\u00bb text_orientation=\u00a0\u00bbcenter\u00a0\u00bb \/][\/et_pb_column][\/et_pb_row][et_pb_row][et_pb_column type=\u00a0\u00bb4_4″][et_pb_text _builder_version=\u00a0\u00bb3.19.9″]<\/p>\n

Je vous ai d\u00e9j\u00e0 \u00e9crit dans le pass\u00e9 pour vous partager l\u2019histoire de notre famille, elle racontait comment votre g\u00e9n\u00e9reux soutien au MAB-Mackay a contribu\u00e9 \u00e0 offrir \u00e0 notre fille un brillant avenir.<\/p>\n

Cela fait maintenant quatre ans que je vous ai adress\u00e9 ma derni\u00e8re lettre, alors que Ainsley \u00e9tait \u00e2g\u00e9e de sept ans.<\/p>\n

Laissez-moi vous raconter. Ainsley est n\u00e9e en 2005. C\u2019\u00e9tait une p\u00e9riode merveilleuse pour mon mari et moi, les nouveaux parents d\u2019une magnifique petite fille. Puis, il est rapidement devenu \u00e9vident que le d\u00e9veloppement de Ainsley avait du retard, et nous avons d\u00e9cid\u00e9 de proc\u00e9der \u00e0 des examens. Pendant deux ann\u00e9es extr\u00eamement difficiles, nous avons d\u00fb traverser de nombreux examens \u00e9puisants et confronter \u00e0 des r\u00e9alit\u00e9s auxquelles aucun parent ne devrait avoir \u00e0 faire face. Quelques m\u00e9decins nous ont m\u00eame dit que Ainsley aurait de la chance si elle vivait au-del\u00e0 de l\u2019\u00e2ge de cinq ans.<\/p>\n

\u00c9ventuellement, nous avons re\u00e7u un diagnostic de dysplasie corticale combin\u00e9 \u00e0 une longue liste de probl\u00e8mes suppl\u00e9mentaires. Qu\u2019est-ce que cela signifie pour Ainsley ? Cela veut dire qu\u2019elle a des dommages au cerveau qui occasionnent des difficult\u00e9s musculaires du c\u00f4t\u00e9 gauche de son corps, de la surdit\u00e9 dans son oreille droite, un trouble du traitement sensoriel et de la parole, de l\u2019\u00e9pilepsie, ainsi que tout un \u00e9ventail d\u2019intol\u00e9rances alimentaires.<\/p>\n

Dans les mois et les ann\u00e9es qui suivirent, la merveilleuse \u00e9quipe du MAB-Mackay nous a aid\u00e9s \u00e0 d\u00e9couvrir un nouveau monde de possibilit\u00e9s pour Ainsley. Il a fallu des mois pour programmer son cerveau et ses muscles \u00e0 reconna\u00eetre les sons, puis \u00e0 les reproduire. Ils l\u2019ont soutenue \u00e0 travers le d\u00e9veloppement de si nombreuses autres comp\u00e9tences qui lui ont permis d\u2019\u00eatre autonome et de pouvoir participer \u00e0 tant d\u2019activit\u00e9s, comme nous le souhaitons tous pour nos enfants. Rien de tout \u00e7a n\u2019aurait pu s\u2019accomplir sans votre soutien vital \u00e0 la Fondation MAB-Mackay.<\/p>\n

Malgr\u00e9 de nombreux d\u00e9fis quotidiens, sa situation semblait se stabiliser. Elle fr\u00e9quentait une \u00e9cole primaire normale, avec des enfants ordinaires, et elle \u00e9tait impliqu\u00e9e dans plusieurs activit\u00e9s parascolaires, incluant la natation, le patinage et la danse. Notre famille s\u2019installait alors dans une routine et les visites au MAB-Mackay se faisaient plus rares.<\/p>\n

Mais les choses ont pris un tournant dramatique \u00e0 l\u2019automne 2014, alors que Ainsley se pr\u00e9parait \u00e0 entrer en 4i\u00e8me ann\u00e9e. Les crises de Ainsley ont recommenc\u00e9, plus fortes et plus fr\u00e9quentes, nous laissant compl\u00e8tement d\u00e9sempar\u00e9s. Nous avions travaill\u00e9 si fort pendant tant d\u2019ann\u00e9es, et il me semblait que nous \u00e9tions revenus \u00e0 la case d\u00e9part.<\/p>\n

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Alors que la chirurgie a sauv\u00e9 la vie de Ainsley, elle l\u2019a aussi laiss\u00e9e paralys\u00e9e d\u2019un c\u00f4t\u00e9, et lui a enlev\u00e9 la vue du c\u00f4t\u00e9 gauche. C\u2019est ce qui nous a ramen\u00e9s au MAB-Mackay, notre deuxi\u00e8me maison.<\/strong><\/p>\n<\/blockquote>\n

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Imaginez ce que c\u2019\u00e9tait pour Ainsley, son cerveau \u00e9tait toujours en \u00e9tat d\u2019\u00e9veil complet et lan\u00e7ait constamment des messages. Pendant des ann\u00e9es, elle n\u2019a jamais r\u00e9ellement pu dormir ni se reposer. Cette hyperactivit\u00e9 a caus\u00e9 des crises \u00e9pileptiques graves, n\u00e9cessitant de nombreuses visites \u00e0 l\u2019urgence avec d\u00e9placements en ambulance, et toute une nouvelle s\u00e9rie d\u2019examens.<\/p>\n

Les m\u00e9decins ont fini par recommander une h\u00e9misph\u00e9rectomie pour Ainsley, une chirurgie complexe d\u2019une dur\u00e9e de 15 heures, qui consiste \u00e0 d\u00e9connecter une moiti\u00e9 de son cerveau. Rien ne peut vous pr\u00e9parer comme parents \u00e0 g\u00e9rer quelque chose comme cela, devoir expliquer \u00e0 votre enfant qu\u2019il a besoin d\u2019une si grande op\u00e9ration et lui promettre que sa vie sera meilleure apr\u00e8s cela.<\/p>\n

Dans les mois qui ont suivi la chirurgie, notre famille de th\u00e9rapeutes du MAB-Mackay a travaill\u00e9 sans rel\u00e2che avec Ainsley. Il a fallu entra\u00eener son cerveau pour qu\u2019elle puisse r\u00e9apprendre \u00e0 tout faire \u2013 depuis les mouvements des bras et des jambes, jusqu\u2019\u00e0 s\u2019asseoir, se lever et marcher.<\/p>\n

Apr\u00e8s des ann\u00e9es v\u00e9cues en dents de scie du point de vue \u00e9motionnel, leur soutien et leur guidance ont \u00e9t\u00e9 notre phare. Aucun parent ne veut imaginer son enfant traverser ce que notre petite battante, Ainsley, a d\u00fb surmonter dans sa vie.<\/p>\n

Actuellement, Ainsley re\u00e7oit des soins et un entrainement pour ses d\u00e9fis au niveau de la coordination, ses difficult\u00e9s auditives et sa d\u00e9ficience visuelle. Son travail acharn\u00e9 donne de bons r\u00e9sultats, et elle a fait tant de progr\u00e8s ! Elle a r\u00e9appris \u00e0 s\u2019habiller \u2013 une des nombreuses t\u00e2ches du quotidien qu\u2019elle a su ma\u00eetriser ces derniers mois et que nous tenons souvent pour acquis. En tant que parents, nous sommes excit\u00e9s pour Ainsley lorsque nous pensons \u00e0 toutes les nouvelles possibilit\u00e9s qui s\u2019offriront \u00e0 elle.<\/p>\n

Ainsley continuera de n\u00e9cessiter l\u2019aide du MAB-Mackay \u00e0 l\u2019avenir, pour la soutenir tout au long de sa croissance, jusqu\u2019\u00e0 l\u2019adolescence et au-del\u00e0. Rien de tout cela ne serait possible sans vous !<\/p>\n

-Jocelyn, fri\u00e8re maman d’Ainsley<\/p>\n

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Web Design Sparrow Digital<\/a><\/span><\/p>\n

\u00a0<\/p>\n

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\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t\n\t\t\t<\/div>
\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t\n\t\t\t<\/div> Je vous ai d\u00e9j\u00e0 \u00e9crit dans le pass\u00e9 pour vous partager l\u2019histoire de notre famille, elle racontait comment votre g\u00e9n\u00e9reux soutien au MAB-Mackay a contribu\u00e9 \u00e0 offrir \u00e0 notre fille un brillant avenir. Cela fait maintenant quatre ans que je vous ai adress\u00e9 ma derni\u00e8re lettre, alors que Ainsley \u00e9tait \u00e2g\u00e9e de sept ans. […]<\/p>\n","protected":false},"author":13,"featured_media":1752,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"footnotes":""},"categories":[26],"tags":[],"class_list":["post-1786","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-histoires-de-clientes"],"yoast_head":"\nAinsley - Fondation Habilitas Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/habilitas.ca\/fr\/ainsley-at-11\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Ainsley - Fondation Habilitas Foundation\" \/>\n<meta property=\"og:description\" content=\"Je vous ai d\u00e9j\u00e0 \u00e9crit dans le pass\u00e9 pour vous partager l\u2019histoire de notre famille, elle racontait comment votre g\u00e9n\u00e9reux soutien au MAB-Mackay a contribu\u00e9 \u00e0 offrir \u00e0 notre fille un brillant avenir. 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