{"id":1784,"date":"2019-01-15T21:39:40","date_gmt":"2019-01-15T21:39:40","guid":{"rendered":"http:\/\/habilitas.ca\/matteo\/"},"modified":"2019-01-29T16:13:01","modified_gmt":"2019-01-29T16:13:01","slug":"matteo","status":"publish","type":"post","link":"https:\/\/habilitas.ca\/fr\/matteo\/","title":{"rendered":"Matteo"},"content":{"rendered":"

[et_pb_section bb_built=\u00a0\u00bb1″ next_background_color=\u00a0\u00bbrgba(68,205,207,0.3)\u00a0\u00bb][et_pb_row][et_pb_column type=\u00a0\u00bb4_4″][et_pb_post_title _builder_version=\u00a0\u00bb3.19.9″ meta=\u00a0\u00bboff\u00a0\u00bb featured_image=\u00a0\u00bboff\u00a0\u00bb text_orientation=\u00a0\u00bbcenter\u00a0\u00bb \/][\/et_pb_column][\/et_pb_row][et_pb_row][et_pb_column type=\u00a0\u00bb4_4″][et_pb_text _builder_version=\u00a0\u00bb3.19.9″]<\/p>\n

C\u2019est difficile de dire le moment exact o\u00f9 nous sommes tomb\u00e9s en amour avec le Centre de r\u00e9adaptation MAB-Mackay. C\u2019\u00e9tait probablement un peu apr\u00e8s la p\u00e9riode de r\u00e9cup\u00e9ration de notre fils Matteo \u00e0 la suite de la greffe de cellules souches r\u00e9ussie, lorsqu\u2019il a \u00e9t\u00e9 pris en charge par le personnel le plus remarquable.<\/p>\n

Notre histoire commence alors que Matteo n\u2019avait que 7 mois. On lui a diagnostiqu\u00e9 le syndrome de Hurler (MPS1), une maladie g\u00e9n\u00e9tique extr\u00eamement rare dont la plupart des m\u00e9decins avaient seulement entendu parler dans les livres m\u00e9dicaux. Nous n\u2019oublierons jamais le moment lorsque les m\u00e9decins nous ont d\u00e9clar\u00e9 que nous avions plus de chances de gagner \u00e0 la loterie que d\u2019avoir un enfant atteint de cette maladie. \u00c0 la suite de cette nouvelle d\u00e9vastatrice, nous avons cherch\u00e9 sans rel\u00e2che des solutions afin d\u2019aider Matteo \u00e0 vivre les \u00e9preuves qu\u2019il devrait surmonter par la suite.<\/p>\n

Apr\u00e8s la greffe de cellules souches \u00e0 l\u2019h\u00f4pital quelques mois plus tard, Matteo a d\u00fb avoir recours \u00e0 des s\u00e9ances d\u2019intensives de physioth\u00e9rapie et d\u2019orthophonie afin de l\u2019aider \u00e0 combler ses retards importants sur le plan du d\u00e9veloppement. Malheureusement, nous avons d\u00fb nous mesurer \u00e0 un autre d\u00e9fi de taille, car Matteo n\u2019avait pas le droit de mettre pied dans les endroits publics \u00e9tant donn\u00e9 que son syst\u00e8me immunitaire \u00e9tait trop faible. Nous ne pouvions donc pas prendre le risque qu\u2019il devienne malade.<\/p>\n

Nous avons communiqu\u00e9 avec notre centre local dans l\u2019espoir qu\u2019ils puissent nous fournir des services \u00e0 domicile pour Matteo. Apr\u00e8s avoir pris connaissance de notre histoire, on nous dit qu\u2019on ne pourrait rien faire pour aider notre jeune gar\u00e7on. La situation et le diagnostic de Matteo \u00e9taient beaucoup trop complexes pour eux. Nous nous en souvenons comme si c\u2019\u00e9tait hier : nous nous sentions d\u00e9courag\u00e9s et indign\u00e9s en raison de leur insensibilit\u00e9.<\/p>\n

Nous \u00e9tions si d\u00e9courag\u00e9s et ignorions comment fournir \u00e0 Matteo les soins vitaux dont il avait besoin. La solution de rechange aurait \u00e9t\u00e9 l\u2019embauche d\u2019un th\u00e9rapeute priv\u00e9, mais cette option \u00e9tait impossible pour nous. Nous luttions d\u00e9j\u00e0 \u00e0 titre de famille \u00e0 revenu unique \u00e9levant un bambin ayant des besoins sp\u00e9ciaux qui n\u00e9cessitait tant d\u2019attention en raison des rendez-vous m\u00e9dicaux et des suivis interminables.<\/p>\n

C\u2019est alors que j\u2019ai communiqu\u00e9 avec le MAB-Mackay. Je pleurais litt\u00e9ralement, car je ne savais plus vers qui me tourner. Nous connaissions d\u00e9j\u00e0 cette institution remarquable \u00e9tant donn\u00e9 que Matteo \u00e9tait n\u00e9 avec une perte auditive grave et avait re\u00e7u des services d\u2019audiologie et d\u2019orthophonie de leur part alors qu\u2019il \u00e9tait bambin. Noy\u00e9s de d\u00e9sespoir, nous avons tendu la main vers la directrice de programmes, qui a pris le temps de nous \u00e9couter et de nous r\u00e9conforter.<\/p>\n

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Il a tant accompli gr\u00e2ce \u00e0 leur aide \u2013 l\u2019une des choses dont il est le plus fier a \u00e9t\u00e9 de repr\u00e9senter le MAB-Mackay dans le cadre d\u2019une course comp\u00e9titive pour des enfants ayant des besoins sp\u00e9ciaux. \u00c0 titre de parents, nous avons v\u00e9cu un moment v\u00e9ritablement incroyable alors que nous regardions notre fils accomplir quelque chose qui aurait sinon \u00e9t\u00e9 hors de sa port\u00e9e.<\/strong><\/p>\n<\/blockquote>\n

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Une semaine plus tard, elle nous a rappel\u00e9s avec la nouvelle la plus r\u00e9jouissante que nous avions eu l\u2019occasion d\u2019entendre depuis un bon moment! Le MAB-Mackay est venu \u00e0 notre rescousse et nous a offert de prendre des dispositions exceptionnelles afin de fournir \u00e0 Matteo la th\u00e9rapie dont il avait tant besoin, dans notre domicile, jusqu\u2019au moment qu\u2019il pouvait venir au Centre.<\/p>\n

C\u2019est en raison du travail acharn\u00e9 remarquable du personnel attentionn\u00e9 du MAB-Mackay que Matteo a finalement appris \u00e0 ramper, puis \u00e0 se tenir debout et \u00e9ventuellement \u00e0 marcher de lui-m\u00eame. Nous n\u2019oublierons jamais combien nous avons pleur\u00e9 lorsque Matteo a prononc\u00e9 ses premiers mots lors de l\u2019une des s\u00e9ances de th\u00e9rapie.<\/p>\n

Gr\u00e2ce \u00e0 votre g\u00e9n\u00e9rosit\u00e9, le MAB-Mackay est ici pour nous et pour 4\u2009000 autres vraies personnes de la communaut\u00e9 chaque ann\u00e9e. Ils fournissent une assistance essentielle aux b\u00e9b\u00e9s et aux enfants atteints d\u2019une d\u00e9ficience physique, et aux personnes de tous \u00e2ges, aveugles ou avec une d\u00e9ficience visuelle, sourdes ou avec une d\u00e9ficience auditive.<\/p>\n

Nous sommes \u00e9ternellement reconnaissants envers la merveilleuse \u00e9quipe du MAB-Mackay, parce que sans elle, notre petit gar\u00e7on ne serait pas l\u00e0 o\u00f9 il est aujourd\u2019hui. Matteo est maintenant en premi\u00e8re ann\u00e9e dans une \u00e9cole r\u00e9guli\u00e8re et il r\u00e9ussit beaucoup mieux que nous l\u2019aurions esp\u00e9r\u00e9.<\/p>\n

Il y a encore tant de d\u00e9fis qui se dresseront devant Matteo alors qu\u2019il combat cette maladie \u00e9volutive et ses effets. Toutefois, avec le MAB-Mackay \u00e0 nos c\u00f4t\u00e9s, nous savons que nous pouvons donner \u00e0 Matteo la meilleure chance de vivre une vie normale.<\/p>\n

Meilleurs voeux,<\/p>\n

Angie et Jonathan
Fiers maman et papa de Matteo<\/p>\n

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\u00a0<\/p>\n

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\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t\n\t\t\t<\/div>
\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t\n\t\t\t<\/div> C\u2019est difficile de dire le moment exact o\u00f9 nous sommes tomb\u00e9s en amour avec le Centre de r\u00e9adaptation MAB-Mackay. C\u2019\u00e9tait probablement un peu apr\u00e8s la p\u00e9riode de r\u00e9cup\u00e9ration de notre fils Matteo \u00e0 la suite de la greffe de cellules souches r\u00e9ussie, lorsqu\u2019il a \u00e9t\u00e9 pris en charge par le personnel le plus remarquable. […]<\/p>\n","protected":false},"author":13,"featured_media":1751,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"footnotes":""},"categories":[26],"tags":[],"class_list":["post-1784","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-histoires-de-clientes"],"yoast_head":"\nMatteo - Fondation Habilitas Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/habilitas.ca\/fr\/matteo\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Matteo - Fondation Habilitas Foundation\" \/>\n<meta property=\"og:description\" content=\"C\u2019est difficile de dire le moment exact o\u00f9 nous sommes tomb\u00e9s en amour avec le Centre de r\u00e9adaptation MAB-Mackay. 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