{"id":1782,"date":"2019-01-15T21:46:13","date_gmt":"2019-01-15T21:46:13","guid":{"rendered":"http:\/\/habilitas.ca\/senna\/"},"modified":"2019-01-29T16:03:54","modified_gmt":"2019-01-29T16:03:54","slug":"senna","status":"publish","type":"post","link":"https:\/\/habilitas.ca\/fr\/senna\/","title":{"rendered":"Senna"},"content":{"rendered":"

[et_pb_section bb_built=\u00a0\u00bb1″ next_background_color=\u00a0\u00bbrgba(68,205,207,0.3)\u00a0\u00bb][et_pb_row][et_pb_column type=\u00a0\u00bb4_4″][et_pb_post_title _builder_version=\u00a0\u00bb3.19.9″ meta=\u00a0\u00bboff\u00a0\u00bb featured_image=\u00a0\u00bboff\u00a0\u00bb text_orientation=\u00a0\u00bbcenter\u00a0\u00bb \/][\/et_pb_column][\/et_pb_row][et_pb_row][et_pb_column type=\u00a0\u00bb4_4″][et_pb_text _builder_version=\u00a0\u00bb3.19.9″]<\/p>\n

Lorsqu\u2019on devient parent pour la premi\u00e8re fois, personne n\u2019est pr\u00e9par\u00e9 pour les inqui\u00e9tudes auxquelles on doit faire face d\u00e8s les premiers instants suivant la naissance du b\u00e9b\u00e9. \u00c0 chaque petit sursaut, hoquet, \u00e9ternuement, on se demande si tout est normal. Dans la plupart des cas, la r\u00e9ponse est oui. Mais pour notre fille Senna, la r\u00e9ponse \u00e9tait un terrible \u00ab non \u00bb d\u00e9vastateur.<\/p>\n

Senna \u00e9tait \u00e2g\u00e9e de deux mois lorsqu\u2019elle a fait sa premi\u00e8re convulsion. Nous ne nous doutions pas que ses convulsions se poursuivraient, habituellement 15 fois par jour environ. Lors des pires journ\u00e9es de Senna, elle en a fait jusqu\u2019\u00e0 39. On se souvient d\u2019avoir pens\u00e9 : \u00ab il faut lui donner une chance \u2013 comment la vie peut-elle ainsi commencer pour notre petite fille ch\u00e9rie ? \u00bb<\/p>\n

Notre monde s\u2019est \u00e9croul\u00e9 lorsque nous avons eu le diagnostic de scl\u00e9rose tub\u00e9reuse, une maladie rare qui s\u2019attaque \u00e0 de nombreux organes et cause un retard de d\u00e9veloppement. Il y a des choses qu\u2019on ne peut accepter et qui d\u00e9passent tout simplement l\u2019entendement. C\u2019est pourquoi nous nous sommes sentis soulag\u00e9s lorsque les m\u00e9decins ont recommand\u00e9 une chirurgie c\u00e9r\u00e9brale juste avant son premier anniversaire.<\/p>\n

La chirurgie n\u2019aurait pas pu mieux se d\u00e9rouler et elle n\u2019a plus eu de convulsion depuis. L\u2019\u00e9tape suivante \u00e9tait celle de diminuer la m\u00e9dication de Senna et de se concentrer sur son d\u00e9veloppement. C\u2019est ce qui nous a conduits au MAB-Mackay, o\u00f9 Senna a re\u00e7u de l\u2019aide pour s\u2019\u00e9panouir de si nombreuses fa\u00e7ons.<\/p>\n

Votre g\u00e9n\u00e9rosit\u00e9 a contribu\u00e9 \u00e0 am\u00e9liorer la qualit\u00e9 de vie de si nombreux enfants confront\u00e9s quotidiennement \u00e0 des d\u00e9fis importants. Laissez-nous vous raconter quelle diff\u00e9rence vous faites dans la n\u00f4tre.<\/p>\n

Lorsque nous avons commenc\u00e9 la th\u00e9rapie au MAB-Mackay, Senna \u00e9tait \u00e2g\u00e9e d\u2019un an et demi, mais dans les faits elle n\u2019\u00e9tait encore qu\u2019un petit b\u00e9b\u00e9 \u2013 elle n\u2019avait pas encore babill\u00e9, ri, ni m\u00eame ramp\u00e9. Nous ne savions m\u00eame pas si elle en \u00e9tait capable. Cela repr\u00e9sentait \u00e9norm\u00e9ment de travail, mais ils l\u2019ont aid\u00e9e \u00e0 franchir de nombreuses \u00e9tapes qu\u2019elle avait manqu\u00e9es.<\/p>\n

Senna \u00e9tait incapable de contact visuel. Son attention visuelle a \u00e9t\u00e9 la premi\u00e8re chose sur laquelle le th\u00e9rapeute s\u2019est focalis\u00e9. Ensemble, avec les ergoth\u00e9rapeutes, nous avons travaill\u00e9 \u00e0 renforcer ses aptitudes. Vous ne pouvez imaginer l\u2019incroyable sentiment de joie que nous avons \u00e9prouv\u00e9 lorsque Senna nous a finalement regard\u00e9s dans les yeux et connect\u00e9 avec nous.<\/p>\n

Il y a tant de choses qui font du MAB-Mackay un endroit vital pour un enfant comme Senna. Leur ludoth\u00e8que n\u2019est qu\u2019un exemple. Nous avons pu garder Senna stimul\u00e9e avec un nouveau jouet chaque semaine. L\u2019un de ses premiers jouets \u00e9tait un panier d\u2019\u00e9picerie rempli de poids qui lui permettait de se lever par elle-m\u00eame et l\u2019encourageait \u00e0 faire ses premiers pas. Les casse-t\u00eates nous ont \u00e9t\u00e9 utiles au d\u00e9veloppement de la coordination main-\u0153il et de sa motricit\u00e9 fine. Apprendre un geste aussi simple que celui de rel\u00e2cher sa poigne lui a demand\u00e9 beaucoup de temps, mais elle sait maintenant le faire!<\/p>\n

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Senna n\u2019avait jamais ri ni souri, ce qui ne nous a pas facilit\u00e9 la t\u00e2che quant \u00e0 savoir ce qu\u2019elle voulait.<\/strong><\/p>\n<\/blockquote>\n

[\/et_pb_text][\/et_pb_column][et_pb_column type=\u00a0\u00bb1_2″][et_pb_image _builder_version=\u00a0\u00bb3.19.9″ src=\u00a0\u00bbhttp:\/\/habilitas.ca\/wp-content\/uploads\/2019\/01\/Senna.jpg\u00a0\u00bb \/][\/et_pb_column][\/et_pb_row][et_pb_row][et_pb_column type=\u00a0\u00bb4_4″][et_pb_text _builder_version=\u00a0\u00bb3.19.9″]<\/p>\n

Notre orthophoniste a travaill\u00e9 avec nous sans rel\u00e2che sur les aptitudes \u00e0 communiquer de Senna. Nous avons commenc\u00e9 par des notions de langue gestuelle de base pour qu\u2019elle puisse s\u2019exprimer. D\u00e8s qu\u2019elle a pu s\u2019en servir, ce fut fantastique! Faire manger Senna et comprendre qu\u2019elle en voulait plus ou qu\u2019elle avait termin\u00e9, c\u2019\u00e9tait le jour et la nuit.<\/p>\n

En tant que parents, nous avons \u00e9t\u00e9 appuy\u00e9s \u00e0 toutes les \u00e9tapes de notre parcours par l\u2019\u00e9quipe merveilleuse du MAB-Mackay. Ils nous ont appris que nous ne devions pas aider Senna autant que nous le faisions, si nous voulions qu\u2019elle puisse essayer de faire les choses davantage par elle-m\u00eame. Si nous la portions toujours, elle ne pourrait jamais d\u00e9velopper sa force musculaire. Cela nous brisait le c\u0153ur de voir Senna en difficult\u00e9, mais ils nous ont fait voir qu\u2019elle ne l\u2019\u00e9tait pas \u2013 elle \u00e9tait en apprentissage.<\/p>\n

Aujourd\u2019hui, Senna a bient\u00f4t 4 ans, et elle a fait tant de progr\u00e8s. Les m\u00e9decins qui disaient que Senna ne parlerait ni ne marcherait peut-\u00eatre jamais seraient surpris de savoir qu\u2019elle a appris \u00e0 parler et m\u00eame \u00e0 danser. En fait, son orthophoniste dit qu\u2019elle comprend beaucoup plus qu\u2019elle arrive \u00e0 exprimer avec son vocabulaire de quelques 40 \u00e0 50 mots. Aucun mot ne peut d\u00e9crire le triomphe que nous avons ressenti lorsqu\u2019elle a finalement dit \u00ab papa \u00bbet \u00ab maman \u00bb, en nous pointant du doigt sur des photos.<\/p>\n

Nous sommes profond\u00e9ment reconnaissants envers le MAB-Mackay de nous avoir aid\u00e9s \u00e0 devenir de meilleurs enseignants et de meilleurs parents pour notre petite championne. Votre g\u00e9n\u00e9reux soutien envers cet organisme exceptionnel a fourni une meilleure chance \u00e0 Senna dans l\u2019atteinte de l\u2019autonomie pour l\u2019avenir qui est le sien. Qu\u2019est-ce qu\u2019un parent veut de plus pour son enfant ?<\/p>\n

Sinc\u00e8rement,
Juliana and Vince,
fiers maman et papa de Senna<\/p>\n

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Web Design Sparrow Digital<\/a><\/span><\/p>\n

\u00a0<\/p>\n

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\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t\n\t\t\t<\/div>
\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t\n\t\t\t<\/div> Lorsqu\u2019on devient parent pour la premi\u00e8re fois, personne n\u2019est pr\u00e9par\u00e9 pour les inqui\u00e9tudes auxquelles on doit faire face d\u00e8s les premiers instants suivant la naissance du b\u00e9b\u00e9. \u00c0 chaque petit sursaut, hoquet, \u00e9ternuement, on se demande si tout est normal. Dans la plupart des cas, la r\u00e9ponse est oui. Mais pour notre fille Senna, […]<\/p>\n","protected":false},"author":13,"featured_media":1711,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"footnotes":""},"categories":[26],"tags":[],"class_list":["post-1782","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-histoires-de-clientes"],"yoast_head":"\nSenna - Fondation Habilitas Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/habilitas.ca\/fr\/senna\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Senna - Fondation Habilitas Foundation\" \/>\n<meta property=\"og:description\" content=\"Lorsqu\u2019on devient parent pour la premi\u00e8re fois, personne n\u2019est pr\u00e9par\u00e9 pour les inqui\u00e9tudes auxquelles on doit faire face d\u00e8s les premiers instants suivant la naissance du b\u00e9b\u00e9. \u00c0 chaque petit sursaut, hoquet, \u00e9ternuement, on se demande si tout est normal. 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